You don't lose hope, because you can't.
Hope reminds you that life is fragile and ferocious and isn’t really yours to give and take away.
Our daughter, Sarah, was only six months old when her skull was surgically severed - a necessary, life-saving operation, we were told.
When she was born, her face and body revealed the telltale signs of the genetic anomaly she would be diagnosed with called Ape…
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