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Joy DeSomber's avatar

I just upgraded my subscription because of "The Sarah Effect." I'm a Law Enforcement Officer and we're supposed to be brave. Due to something that happened on the job, I had surgery on Wednesday. I dreaded having my IV put in, and I didn't feel brave. Do you want to know who I thought about? You, Sarah, and your mantra, "You are strong and brave" kept going through my head, and I thought about how incredibly brave you are.

Thank you for being there for me. You helped me feel stronger and braver than I thought I could be.

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Jeannie Ewing's avatar

Oh my gosh, Joy, can you write a testimonial that I could share with others on Substack? This absolutely gripped my heart when I read it—I think mainly because it doesn’t occur to me that someone we’ve never met might be thinking about something Sarah said on Substack while they were trying to be brave in their own lives. That’s just…humbling. Truly incredible. I’d love to share what you wrote here with others if that’s okay with you!

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Joy DeSomber's avatar

I'd be honored if you shared what I wrote; what you are doing here is wonderful and it made me so happy to read about "The Sarah Effect." Everyone should get the opportunity to learn from Sarah and see her shining, positive attitude, encouraged by you, which is a beautiful interaction to watch. Her "You are strong and brave" sign off can teach all of us that whatever we are going through, we just need to keep going.

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Jeannie Ewing's avatar

@Joy DeSomber , if you don’t mind, I’ll quote you and post it on my Notes sometime soon? Would that be okay? And if I also included it on my About or Welcome page?

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Joy DeSomber's avatar

It would be an honor. It means a lot to be a part of "The Sarah Effect."

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Jeannie Ewing's avatar

Thank you so much, Joy. :)

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Jeannie Ewing's avatar

I’m so glad Sarah’s message reached you when you needed it most, Joy, and that it somehow sustains you as you recover from surgery.

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Heather Hay Charron 🇨🇦's avatar

Joy, that made me cry. Thank you for doing what can often be a thankless job. The Sarah effect works, doesn’t it!

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Joy DeSomber's avatar

Yes, there's something magical about "The Sarah Effect" and we can't help but feel inspired when we see her talk to us, with Jeannie by her side, encouraging her.

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Jeannie Ewing's avatar

Thank you, Joy.

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Kathy Stout's avatar

Oh, Sarah, this makes me so sad. Unfortunately, the world is full of people who are unkind and uncaring. Remember that there are also so many people who are not like that. There are people who want to know you for who you are and not for how you look. We are all beautiful in different ways. I see your beauty in your kindness and your caring heart for other people.

I taught elementary school for a long time. I was around all kinds of children for years. There wasn’t a day that went by that someone wasn’t mean or unkind to someone else for whatever reason. I considered those teaching moments. I would talk to my whole class about how to treat other people all the time. I hope that your teacher is doing that also. I can tell that your mom is using every teachable moment she has to help you.

There will come a time in your life when you’ll look back at this particular period and think “I didn’t think I could get through that time of my life, but I did.” You are stronger than you think. I’m sure you have ways to cope with the mean remarks and behaviors. Mom is teaching you to talk them out. That is such a good way to deal with it. Don’t bury all those emotions inside. The people who are mean are probably hurting inside for some unknown reason and so they let it out by picking on you. Hold your head up high and walk away from them. Try not to let them get to you. Think about the friends that you do have that are friendly and kind to you. Focus on them. Like Mr. Rogers says, “Look for the helpers.” They like you for a reason. Who needs bullies?

Mom, if my response is too much for Sarah or for you, I apologize if I have overstepped. I’m sure nothing I have said is something you have not already said. May God bless your little girl with love and happiness that overshadows the bad things. She doesn’t deserve that kind of treatment- no one does.

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Jeannie Ewing's avatar

This is lovely, Kathy! Thank you so much for typing out such a thoughtful response.

I love how you framed these as “teaching moments.” You’re right that there are kind and unkind people all around us. As our family makes our way through the book, Wonder, we often pause to discuss that. Like, why might someone be acting in a mean way?

Many times we learn that a certain kid who’s been bullying or ostracizing Sarah or Felicity has a parent in prison or their parents recently divorced. I tell my kids that everyone has burdens they carry, and it doesn’t mean we have to like that person or kowtow to them, but it helps to know that we can open our hearts in compassion when we remember that they are hurting in some way they can’t explain.

“Look for the helpers” is one of my favorite Mister Rogers sayings. Thank you for reminding me of it here.

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Thebrotatochip32's avatar

This is lovely. Sometimes people are hurt and just need some loving and we can all be the person to give it to them

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Jeannie Ewing's avatar

I believe that, too!

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julie elder's avatar

Sarah—

My thyroid quit working when I was 3 or 4 years old. Our thyroid helps us grow, so I didn’t get taller I only got chubbier. Children were mean to me too because I didn’t look like them.

I think we have similar very loving hearts, you and I. I think you will choose the same thing I did as I got older, and that was to be kind and loving and welcoming to everyone so they knew that they could be safe with me.

You and I are AMAZING!! ❤️

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Jeannie Ewing's avatar

Oh wow, Julie, thank you for opening up about that. I have a thyroid disorder but it wasn’t diagnosed until adulthood. What you shared here makes me realize that we truly do not know what someone is dealing with. In our family, we NEVER comment about someone’s body size. But we do talk about why and that everyone is shaped differently—some are short, some are tall. Some are big, some are small.

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julie elder's avatar

I’m so glad you talk about it at home!

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Melinda Luckay's avatar

Sarah I think you are beautiful inside and out! The world is a better place because of you.

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Jeannie Ewing's avatar

Thank you, Melinda. The world is better because of you, too. :)

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Kharpern's avatar

Hi Sarah,

I’m wondering if you have watched the movie “The Sound of Music”? I’m 67 years old and I’ve watched it several times over the years because it’s one of my favourites. So I’m mentioning this movie because it has a really awesome song titled “My Favourite Things”. Maybe you know it.

Maria (one of the main adult characters) sings this song to the Von Trapp children during a thunderstorm because they are upset and scared.

I find that music helps me get through hard times. I was thinking maybe this song would help you get through hard times as well.

Nana Hugs from Canada 🤗💕

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Jeannie Ewing's avatar

@Kharpern guess what? I used to sing “My Favorite Things” to Sarah before her surgeries. We’d sit in the pre-surgical area, waiting to check in with the anesthesiologist and craniofacial surgeon or orthopedic surgeon, and poor Sarah, as a baby, didn’t understand why she couldn’t eat or drink anything.

So I would hold her and stroke her hands or her hair and softly sing “My Favorite Things” to her. Just came out of me one day, and it clicked for her. Instantly calmed her down.

That’s incredible that you brought this up, because it is such an intimate memory I associate with that song. (But no, she hasn’t seen The Sound of Music. We need to get the movie!)

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Kharpern's avatar

It’s definitely a special song. Thank you for sharing this precious memory.💕

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Jeannie Ewing's avatar

Thank you for reminding me of it. :)

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Dan Blank's avatar

I didn't expect to get this emotional when checking Substack at lunch today. Thank you Jeannie and Sarah for sharing this.

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Jeannie Ewing's avatar

Oh, Dan, thanks for telling me this. I am glad it touched your heart in a meaningful way. It means a lot that you took the time to let me know.

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Amy Oscar's avatar

Sarah - your message today touched my heart. You don't know me but I am the daughter of a person who was different, in a different way than you - my dad had cerebral palsy and when he was your age, people didn't understand his differentness either.

They were sometimes mean to him - like those girls who threw the ball at you were mean. And like you, he didn't like it and he was hurt and also, angry. Which was normal and understandable. You have a sister and my dad had two brothers. And they all had to grow up together in a world where some people are nice and some people are mean.

My dad had to wear leg braces, because at first, he couldn't walk without them. Later, when they came off, his brothers taught him to play baseball and included him sometimes when all the kids would play that game outside. And being included was such a good feeling.

My dad grew up and went to college and fell in love and had a family - three daughters. And I'm the oldest one. He was a social worker, who helped other people. Maybe his childhood experiences, playing baseball with his brothers, made him choose the work he did. He was a recreation director and ran a summer camp for kids who lived in the city. Their families didn't have much money so the camp was free. And those kids had their first experience of seeing trees and a lake - and, of course, playing games like baseball with other kids.

I'm thinking about something my dad used to tell me, He said, "Everyone struggles with something. We're all disabled, all different." He said that some of us wear our difference on the outside, like he did - like you do. But most people wear it on the inside where it makes them scared and sometimes mean, like those girls.

Sarah, as so many of your online friends have already commented (I read some of their letters here) your deep beauty shines right through. There are all kinds of beauty and to me, yours is the most important kind. It's soul beauty - it's heart beauty. It shines right through your lovely face, illuminating your smile and your eyes with warmth and generosity. I send you this note with my own warmth and love. Heart to heart. Smile to smile.

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Jeannie Ewing's avatar

Amy, it sounds like your father was an incredible person who had a powerful influence in your life. I want to first thank you for sharing a little bit about him here and honoring who he is and the gifts he brought to the world. I especially love what you said you grew up remembering he told you, that everyone is disabled in some way, because we are all different—some on the outside, some on the inside.

We know a few people with cerebral palsy, and it’s beautiful and heartening to hear about your dad who grew up to be a social worker, get married, and have a family—to live a full life but to be able to see people through the lens of love.

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Amy Oscar's avatar

❤️ the other thing he taught me was that other people’s reactions to his differentNess, including their praise and lionization of him, were none of his business. People would approach him and say admiringly, “you inspire me,” and he’d try to educate them. Explaining that their compliments, while well meaning, were an intrusion and really more about their own journey than his. In his midlife he was almost Buddha like in this way. But later he was less patient about this. When an admirer approached to say, “wow. Look at all you’ve accomplished. If you can do it I can too!” He’d say,”that’s your bag, man. Don’t put that stuff on me.”

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Jeannie Ewing's avatar

Wow, that’s such an important point, Amy. I have heard this from other people with disabilities—that to hear “you inspire me” can be kind of an insult in a way. I’m glad you pointed this out. I am learning so much from you and from the influence your dad had on your life. Thank you for sharing all of this!

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Sandolore Sykes's avatar

SARAH!!! YOU ARE BEAUTIFUL!!!!!

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Jeannie Ewing's avatar

Thank you, Sandalore! :)

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Cailleach Anam's avatar

When I was an ignorant elementary student, I made fun of a student in my grade who couldn’t tie her shoes. My teacher assigned me to tie her shoes for the rest of the year. I was embarrassed and ashamed by what I said. By the end of the year, I learned Shelly was a beautiful soul and I stood up for her. I am about to finish my 30th year in special education. Shelly changed my life. If you asked me who my heroes are, I would say, without hesitation, “My students”. Every day, they show up to do hard things all day long, and most of them are filled with brightness and love. That’s your beauty, Sarah. “Prettiness” doesn’t last, but the glorious beauty of your soul will last forever.

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Jeannie Ewing's avatar

Oh, wow, @Cailleach Anam . That’s a powerful story. To know that your heart was completely changed to Shelly after a year of tying her shoes for her—and now you are a special education teacher—is really a testament to the power of kindness. Thank you for sharing this.

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Dorothy Layman's avatar

Sarah, I am so glad that you are there for me. You are an awesome young lady and so brave to tell your story. God is my friend too and He led me to watch you and your mom. I am thankful for you and I am there for you, too.

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Jeannie Ewing's avatar

How sweet, Dorothy. I love that.

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Jane Hiatt's avatar

Sarah, I'm sorry kids have been mean and made fun of you. You are very brave to share your feelings with all of us. I don't know if you've ever heard of this but there is something called the "wounded healer". It refers to people who have had very hard things happen to them, especially when they are young, and they have worked through them as best they can. By doing so, their hearts open so wide and they become very powerful healers. When you've had to heal your own heart, you're not afraid of someone else's pain and you can be there for them. I think you are a person like that and the world needs you. Your face is beautiful, not because it's symmetrical but because it's expressive. You don't hide your feelings and that makes you look very alive.

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Jeannie Ewing's avatar

Jane, you are the second person to mention the term “wounded healer!” Did you know that “The Wounded Healer” is one of my favorite books by Henri Nouwen? I appreciate you bringing that up. A lot of comments have revolved around how, when we are the recipients of someone else’s unkindness, we can alchemize that into choosing to be kind when we are out in the world because we know the pain of being hurt by other people. Thank you so much!

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Jane Hiatt's avatar

I'm so glad to hear that's your favorite book. I wasn't sure if it was a concept that would resonate with a ten year old but as her main support, I'm glad it reminded you of what you already know is true.

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Jeannie Ewing's avatar

Absolutely, Jane. It’s a beautiful paradox to consider what a “wounded healer” means, or is, and I think it’s helpful for each of us to remember that we don’t have to be fully healed or perfect before we can help others.

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Melanie Williams de Amaya's avatar

Hi Sarah. I'm really sorry that the other Sarah and her friends treated you that way. That was really unkind of them and I imagine they feel uncomfortable inside for doing something like that. It was very courageous of you to share that experience with us. And very powerful that you can name how you feel. Not everyone has that skill and it's a really important one in life. Also, it was beautiful of you to remember that other people can feel sad and excluded too and to offer your care and compassion to us. Thankyou. There are lots of ways to be smart and not everyone is smart in the same way. There are lots of ways to be beautiful and not everyone is beautiful in the same way. Thankyou for being uniquely you even when it feels hard.

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Jeannie Ewing's avatar

I was so surprised at the way this video turned out, Melanie. The fact that Sarah wanted to do this for all of you and wasn’t ashamed of crying in front of the camera—and in front of people she’s never met—really astounded me. I have never been that brave. Ever. Sarah’s natural vulnerability, it seems to me, is what speaks most to the people who stop by and comment. It’s what touches us, I think, because we recognize the truth in that level of emotional intimacy shared with another.

Thank you always for your sensitive and thoughtful comments.

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Suzanne Peters-Float's avatar

That's a really lovely helpful reply to Sarah, Melanie. I was too full of tears to be able to write anything like that. Compassion is great, but to offer wisdom and gentle advice at the same time is empowering.

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Melanie Williams de Amaya's avatar

Thankyou Suzanne for raking the time to read and respond to my comment. That's very thoughtful of you. And sometimes when we are touched the deepest we dont have words, and that's ok too.

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Laury Boone Browning's avatar

What an intimate and precious conversation between you two (and all the rest of us.) Thank you Jeannie and Sarah for being willing to share this tough story, and these important and meaningful lessons. Sarah, you have a lot to teach us.

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Jeannie Ewing's avatar

Aw, thanks for stopping by to watch this and comment, Laury. I appreciate you being here!

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Patricia aka Tricia kramer's avatar

Everyone is beautiful in there own way you are beautiful just the way you are keep it up n don't let other people tell you otherwise peace of n happiness sarah n her family

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Jeannie Ewing's avatar

That's a perfect reminder, Patricia. Thank you.

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Patricia aka Tricia kramer's avatar

You're welcome

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Grace Goose's avatar

Sarah rocks! She is such a cool individual! Cute and cool but most importantly compassionate.

People who respond negatively to those who are not the same as them live in a very narrow ignorant world. I would advise Sarah to only hang out with cool people.

It’s easy to recognise cool people. They are warm and open and treat everyone as their equal.

I could immediately tell that Sarah is cool ♡♡♡♡♡

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Jeannie Ewing's avatar

Yes, Grace! So true. Sarah's friend Annie is one of the cool people. 😎

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Dan Swan's avatar

I think Sarah is just beautiful, and I am so proud of her for being courageous in sharing her story. Blessings to you Sarah, you are loved ❤️

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Jeannie Ewing's avatar

We appreciate these kind and encouraging messages, Dan. Thank you.

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